Our Journey Through Waiting For, Receiving, and Recovering From a Second Heart Transplant
Friday, July 10, 2015
The Good and The Bad
I had another biopsy yesterday, and there was GREAT news! I am back down to no rejection! The doctors said that the biopsy could not have looked cleaner, which is so great to hear. I am so happy, and this means I can continue working on getting stronger every day. Or, typically, it would mean that. However, I haven't been feeling very good for about a week. I have been tired, feel weak, feel like I've lost most of the energy that I always talked about, and have been experiencing severe pain in my chest. Not chest pain like I was having before my transplant that came from the heart, but more muscle and bone pain from my incision. My actual sternum hurts so bad and I can't seem to find any comfortable position that helps. My blood sugars have been out of whack this past week as well - higher than usual, and then all over the place once I take insulin. Overall, it's just been a strange week.
Of course, like I said, I am so happy that I am not in rejection, but I was almost expecting it going in to my biopsy yesterday. Rejection would have been an explanation as to why I am feeling the way I am, and it would have given me a reason. Now that I know I'm not in rejection, I don't have any answers or reasons as to why I am feeling this way. My medication levels all looked good - even the Prograf! It was incredibly high for over two weeks, they brought the dose down, then it was too low for over a week, and now, when I'm feeling the worst, they say it is perfect! It makes no sense to me.
They did an x-ray yesterday to make sure nothing had come loose in my chest and that nothing was wrong with the sternum, and they said everything looks good there as well. All I know is that it doesn't feel right, and I woke up this morning with it hurting even worse than the past couple of days. To me, it feels worse than right after the surgery, when it was freshly broken, and even taking narcotics doesn't seem to even take the edge off. I am ready to be feeling better and want to get back to rehab! I haven't made it to rehab at all this week because of the pain. It is so frustrating to not know what is going on; and I think it makes it even worse that I was doing SO well, with such little amounts of pain or setbacks, and feeling so good. To go from that to what I'm experiencing now has been rough. I have called the surgeon this morning to see what he suggests or if he wants to run any more tests, and until then - I could use all the prayers and well wishes I can get!
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