Anyways, the strangest thing happened over the weekend. On Saturday morning, I was out with my aunt and my legs started to hurt a little, but not much at all. I kind of just brushed it off as nothing, that maybe we had just been out too long or I was walking too much. After we got home, I didn't notice it anymore and I was fine that evening when I had more visitors over. After they left, I took a bath and they started to hurt again. I went to bed, but around 1 am, I woke up just screaming and crying. It was the most excruciating pain - absolutely worse than anything I've felt since the transplant. Even the amount of pain I was in right after surgery I don't really remember because of all the narcotics I got in the ICU. But even that pain didn't compare. It felt like muscle spasms and cramping, but also felt like my bones were just crushing. I don't know how to explain it, but I suddenly couldn't even stand, let alone walk, without my legs buckling from underneath me and giving out. I tried pain meds, heat, another bath - but nothing gave any relief and I was just miserable. I didn't ever fall back asleep from the initial wake up at 1 in the morning, and by the time 7 hit I just couldn't take it anymore. We called the team and they said we wouldn't have to go to the ER, but to meet them in clinic and get labs drawn. We got there, they saw the amount of pain I was in and immediately sent me to the ER. They drew labs and discovered that my magnesium level was way too low, so they gave me heavy duty pain meds through an IV, and magnesium through an IV as well. Some oral magnesium and increased the dose I take everyday and sent me home. They said it was most likely a combination of the low magnesium level, and possibly even over-exercising and walking too much. They also said that overheating can cause it too, so those baths and heating blankets that I thought were good ideas were actually making matters worse! By the time I was home though, my legs felt completely fine. Like, back to 100%! You'd think maybe they'd be feeling a bit better, but still achy or something - nope! It's like it never even happened. It was so strange, and now I'm totally back to normal. So I'm staying positive, not letting the small setbacks get in the way of the big picture - overall, I've been doing great since I've been able to be home and am so happy it's stayed that way! I had clinic today that I'll make another post about, and they said I was looking great and all of my labs looked good, too. The plan as of now is to continue with cardiac rehab (I started that today, too - more in the next post) every day and then have another biopsy on Friday and we will go from there depending on the amount of rejection there is. Let's keep our fingers crossed for none - that way I can stay home and lower the prednisone dose! Now that would be good. 😊
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